The following are recent PopMedNet items in the news:
“Significant strides are being made in discovering ways to make health data usable, informative and protected, according to Health Affairs. The policy journal recently highlighted public sector solutions that advance national health data sharing in an article titled, Four Health Data Networks Illustrate the Potential for A Shared National Multipurpose Big-Data Network.” Stephanie Kanowitz. September 04, 2014
“By September 2015 [sites] will be linked together to create a giant repository of medical information from 26 to 30 million Americans. Nothing of this scale has been built before, and researchers say the potential of the network to speed up research efforts and to answer questions that have long vexed scientists cannot be overstated.” Ariana Eunjung Cha. April 15, 2014
“Three pilot projects have illustrated the potential of the Query Health initiative to handle population-level health queries across diverse clinical systems…” Susan D. Hall. April 8, 2014
“The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today selected a consortium led by the Harvard Pilgrim Health Care Institute to serve as the Coordinating Center for a new national data network designed to enhance the nation’s ability to conduct patient-centered comparative effectiveness research (CER).
The Coordinating Center will provide technical and logistical support to the proposed new National Patient-Centered Clinical Research Network. The initiative’s goal is to improve the nation’s capacity to conduct CER efficiently and learn from the healthcare experiences of millions of Americans by creating a large network of health data representative of patients from across the country.” Patient-Centered Outcomes Research Institute. September 10, 2013
“The Massachusetts eHealth Institute at the Massachusetts Technology Collaborative announced today that the MDPHnet (Massachusetts Department of Public Health Network) system has launched. MDPHnet is a system that allows users at the Department of Public Health to query aggregated patient-level data at the health centers and medical practices to identify illnesses and chronic conditions within communities across the state….” Massachusetts Technology Collaborative. November 6, 2012
“A steady flow of reliable data is necessary to coordinate and monitor patient care, analyze and improve systems of care, conduct research to develop new products and approaches, assess the effectiveness of medical interventions, and advance population health.” Dr. Rich Platt. October 1, 2012
The Coordinating Center, led by Robert Califf, MD of Duke, will operate in close partnership with Richard Platt, MD, MSc of Harvard Pilgrim Health Care Institute and Harvard Medical School. Eric Larson, MD, MPH, Executive Director of Group Health Research Institute and current Chair of the HMORN Board will lead the Provider-Health Systems Interactions core. Jeff Brown, PhD at Harvard Pilgrim will co-lead the Electronic Health Records core. The Coordinating Center will leverage prior HMORN advancements in distributed research networks, query tools, multi-center research efficiencies, and more.
Three of the 7 funded demonstration projects are led by HMORN investigators (Gloria Coronado, PhD and Lynn DeBar, PhD of KP Northwest, and Greg Simon, MD, MPH of Group Health), and 2 of the remaining 4 involve HMORN sites: Dr. Jeffrey Jarvick of the University of Washington is partnering with Henry Ford, Harvard Pilgrim and KP Northern California, plus Mayo Clinic. And a UH2 led by Dr. Susan Huang at the University of California at Irvine will be conducted in partnership with Harvard Pilgrim. NCCAM Press Office. September 25, 2012
“The Query Health initiative could help providers give better care to their populations and meet Stage 3 requirements…” Jennifer Prestigiacomo. August 23, 2012
“This past year, I took a leave of absence from Allscripts to serve as the Office of the National Coordinator for Health IT (ONC) coordinator for Query Health, an Open Government Initiative that is establishing standards, policies and services for distributed population queries of clinical records. It comes at a unique moment in time …” Rich Elmore. July 12, 2012
“Harvard School of Population Medicine’s Rich Platt and I presented on Distributed Queries and Query Health at an Institute of Medicine meeting on Digital Data Priorities for Continuous Learning. The session focused on the continuous improvement of using large-scale data sets in health care and how Query Health helps to achieve this goal. Rich Platt announced the newest Query Health Pilot: Mini-Sentinel” Rich Elmore. July 12, 2012
“In efforts to ‘turbocharge’ the understanding of population health, performance, and quality, the Office of the National Coordinator for Health IT founded the Query Health project to develop standards for distributed population queries…” Rich Elmore. June 11, 2012
“I’m finishing up a year with the Office of the National Coordinator for Health IT. Thought you’d be interested in this blog post, summing up the work on Query Health…” Rich Elmore. May 31, 2012
“…decentralized alternatives can achieve most secondary use program goals in a manner that is more protective of privacy and security in the long term.” Center For Democracy & Technology. March 22, 2012